Do you have multiple sclerosis? Have you been prescribed a disease modifying drug for your MS? Keep abreast of developments and advice for those taking MS drugs especially if you are on drugs that are given by infusion. Monitoring by your clinical team is important and monitoring activities are constantly updated. Your local MS care team will be able to advise you of any changes affecting you. For further information on DMTs click here.
A recent report shows that the infection is spreading quite quickly at present but the actual number of people who have confirmed disease is still very low outside a few “hot-spots”. However there is some question over how many “carriers” (undiagnosed cases) there might be in the community.
For National MS Week this year, MS Research is holding a Digesting Science day at the Vassall Centre on the 14th of March and welcomes any families with young children that would benefit from this event
The MS QuDos awards are a joint venture by the MS Trust and the pharmaceutical industry to recognise excellence in various categories of MS treatment. The award for outstanding Allied Health Professional (AHP) is open to any UK professional treating MS who is not an MS nurse or doctor. This year it was won by Tania Burge. Tania is the physiotherapist who has been running the MS rehabilitation services at the Bristol and Avon MS Clinical Unit (BrAMS) in Bristol for over 8 years. Tania’s award was in recognition of her outstanding efforts to provide high quality, innovative services for people who have MS in the Bristol area.
Real World Evidence for improving services in MS is a newly created category within the QuDos framework seeking to advance the delivery of services based on successful research programmes delivered in real-world settings.
TOPS MS stands for Therapeutic Opportunities in MS and the TOPS Team is a collaboration between clinical and research MS specialists, exercise scientists, Orthotists and other professionals in Bristol. TOPS clinical and research therapists deliver specialist services to assist mobility, balance and fatigue with the aim of maintaining function, fitness and wellbeing for people with MS. Funded in part by MS Research the team combines research and clinical experience to offer an integrated services based on a range of therapeutic opportunities according to need for individuals who have MS at community and NHS locations, promoting long-term symptom self-management.