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TOPS TEAM WINS NEWLY CREATED AWARD for 'Real World Evidence of effective development of MS Services'

Real World Evidence for improving services in MS is a newly created category within the QuDos framework seeking to advance the delivery of services based on successful research programmes delivered in real-world settings.

TOPS MS stands for Therapeutic Opportunities in MS and the TOPS Team is a collaboration between clinical and research MS specialists, exercise scientists, Orthotists and other professionals in Bristol. TOPS clinical and research therapists deliver specialist services to assist mobility, balance and fatigue with the aim of maintaining function, fitness and wellbeing for people with MS. Funded in part by MS Research the team combines research and clinical experience to offer an integrated services based on a range of therapeutic opportunities according to need for individuals who have MS at community and NHS locations, promoting long-term symptom self-management.

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A Very Merry Christmas to you

The festive season is upon us once more and MS Research would like to take this opportunity to thanks all of the wonderful people who have helped and supported us in so many ways this year, whether it has been fund raising through hard work and sponsorship, donating your time and money or helping us raise our profile and awareness of MS by passing on your knowledge.

Our office will be closed from the 22nd December until the 2nd January 2018.

We thank you very much and wish you a very Merry Christmas and a Happy New Year.

Chairman's Blog Feb 2018

The New Year has started with high-profile announcements regarding the new drugs in the pipeline for MS. Several such developments were announced at the recent ECTRIMS and ACTRIMS (respectively: European and Americas Committee for Treatment and Research in MS) meetings.

In 2018 we look forward to following their progression through the various stages needed to show the efficacy and safety of new medicines. Many MS Drug watchers will know that such announcements do not always lead to a new drug being effective, safe or marketed in Europe, but it is good to know that the whole field of drug development for MS is alive and very active!

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Chairman's Blog March 2018 - Brain Health

Promoting Brain Health in MS is an international campaign to raise awareness and promote best practice in the treatment of MS This vast undertaking evaluates current practice, campaigns for better provision and raises many issues concerning MS care and treatment often overlooked in the pressures of everyday clinical practice.

The Brain health team comprises internationally renowned medical specialists in MS and provides, in the form of a major report, a comprehensive review of the social and economic impact, diagnosis, treatment and importance of timely intervention in MS.

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MS Fatigue Management Course

Thursday 10th January 2019 saw the start of the 15th FACETS course funded by MS Research. Standing for Fatigue: Applying Cognitive behavioural and Energy effectiveness Techniques to life Style, FACETS is a group based therapy programme, initially designed by members of the psychology, research and clinical teams at Poole Hospital in Dorset and the University of Bournemouth, which has so far helped over 100 people in the Bristol area.

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